A new patient group was launched to campaign for greater awareness, improved diagnosis and better treatment of Pelvic Congestion Syndrome (PCS).

The initiative was created in response to concerns that PCS remained poorly understood, leaving many women undiagnosed, misdiagnosed or without appropriate treatment.

Although treatment options were available, awareness among both patients and the wider public remained limited. The group aimed to help address this by improving understanding of the condition and highlighting the specialist investigations and treatments available.

It also sought to provide a forum where women affected by PCS could share their experiences, discuss the condition and receive support from others facing similar difficulties.

Patients, campaigners and anyone with an interest in PCS were invited to become involved and support efforts to improve awareness, diagnosis and access to treatment.

As part of the group’s formation, an initial meeting was organised for those who had expressed an interest in taking part.

The meeting took place on 10 February 2016, with attendees invited to discuss how the group could support patients and campaign for improvements in PCS care.