Pelvic Congestion Syndrome is not well understood and as a result many go undiagnosed and untreated. This lack of awareness and understanding means that many women who are affected are misdiagnosed and either inadequately treated or not offered any treatment at all.
Treatment options are available, but only a minority of the population know this. Therefore more needs to be done to make people aware of what is available and to know that they do have options. Once established, a patient group focussed on PCS could help women in a number of ways:
We would like to know whether you would be interested in joining this patient group and help campaign for better awareness, improved diagnosis and treatment for PCS.
In addition we would welcome the involvement of anyone who has an interest in PCS, so please feel free to pass the invitation on to anyone you think might wish to take part.
As a first step in the formation of the group we are organising a meeting for all those who express an interest in being involved.
This meeting will take place on 10th February 2016. If you would like to take part, please let us know your availability on the 10th February by emailing firstname.lastname@example.org